My Quin Story Blog

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2 weeks ago

My Quin Story

Those is the Chronic Fatigue Community are our brother and sisters in this fight, as there are many floxed folks in the CFS/ME community. The advancements they uncover will benefit us all.Happy #MillionsMissing day of action! We're excited to be participating today, and we'd like to say a special thanks to The #MEAction Network for organizing and to OMF supporters and the ME/CFS community for their ceaseless dedication in building the reach and power of this movement. Your perseverance is incredibly inspiring!

If you haven't made plans to join in today, there's still time. Just visit millionsmissing.org to find a protest near you, or visit www.meaction.net/virtual-protest-2018 to discover how you can join the virtual protest from anywhere in the world.

Be sure to follow us on social media today for updates from the protests, and tag us in your posts so we can share with the community. #MillionsMissing #MayMomentum
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2 weeks ago

My Quin Story

Dr. Beatrice Golomb at the University of California, San Diego, whom I have had the pleasure to work with in the past on FQ toxicity issues, suggests that fluoroquinolones are damaging mitochondria. She says because mitochondria retain some similarities to their bacterial ancestors, antibiotics pose a threat to them and every cell in the body can be affected. This explains why a wide range of symptoms can appear and get worse over time. This, in a nutshell, is chronic floxing. ... See MoreSee Less

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2 weeks ago

My Quin Story

In 2015 researchers studying the non-antibiotic effects of Fluoroquinolones (FQs) on human kidneys cells reported that FQs can bind to iron atoms on active sites of several enzymes that modify DNA. This results in epigenetic changes that might be related to some of the drugs’ side effects. Yet another study pointing to the epigenetic traits of the FQ's.

www.jbc.org/content/290/36/22287.full
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4 weeks ago

My Quin Story

Cipro eardrops have been around for quite a while. Here is a research gem from 2016 that shows they degrade tympanic collagen in mouse studies. Cipro eardrops have been associated with healing complications in humans. The researchers conclude that "These findings could explain tympanic membrane healing problems associated with quinolone eardrops."

The fluoroquinolones attack collagen via several different mechanisms yet FQ eardrops and eyedrops are common place in our society today. What could possible go wrong with saturating some of the most delicate collagenous structures in the body with collagen destroying antibiotics?

journals.sagepub.com/doi/abs/10.1177/0194599816633671?journalCode=otoj
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1 month ago

My Quin Story

www.myquinstory.info/pulling-the-trigger-how-the-fluoroquinolones-can-cause-mutations-and-disease/ ... See MoreSee Less

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Welcome

This website was created to chronicle my experience, observations, and opinions, as I travel through life with damage received after having an adverse event to a fluoroquinolone (FQ) antibiotic, Levaquin. This blog is the second oldest blog of it’s type and is a true grass root’s project, not designed to generate web traffic, income, sell books, or promote lawyers, but instead dedicated to the thousands each year who become chronically affected and disabled by these prescription drugs. This supposed “safe” class of antibiotics are given out in hundreds and thousands of prescriptions daily around the world for routine needs.  Unbeknownst to many, these drugs can cause horrific adverse events that can disable the most healthy of individuals creating long lasting injuries.  These adverse events are considered statistically insignificant by drug companies and the FDA, even though their rate of occurrence is fairly high.
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Often the victims do not know what has befallen them, not suspecting that these drugs could be the cause of their symptoms, especially in those individuals who experience health issues months or years after ingestion. Compounding the problem, the medical community is woefully ignorant to their effects and the long term damages making the suffering endured by these drugs greatly increased. The FDA knows how dangerous these drugs are, and have coined an acronym FQAD (Fluoroquinolone Associated Disability) for the symptoms they see. However, and quite unfortunately, they refuse to act in a responsible manner that would help safeguard the general public. Currently there is no medical cure and no magic bullet.
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Join me as a blog about research, advocacy, and living life after the FQs.  I collect stats on those who are chronically suffering after taking FQ’s. If you are new to this plight, please use caution when treading the Internet waters, the information can be overwhelming, opinions vary, and emotions run high. Unfortunately, like many other Internet communities, there are strong inter-community politics and camps of ideas which should  be also approached lightly by the newcomer.   Having said that, those that are in true need of help and are seeking honest answers to their plight can usually find help and solace. If you are new and want to know What is Floxing?, click here.  Other links that may help is my Guide to Facebook Groups, FQ Faq, the popular What Helps page, which is information gleaned from the floxed community and its free.  
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I receive dozens of emails each week regarding fluoroquinolones, many from newly affected individuals.  Many times it is impossible for me to return all emails in a timely manner, but I try my best.  Please subscribe to my email list using the form in the right hand column.
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Many people email me and ask how I am doing.  I have been dealing with this adverse event for well over ten years.  Although I worked for many years into my reaction I am now, for the most part, functionally disabled due to progressing chronic fatigue/mitochondrial/energy issues.  I have been dealing with what my doctor believes is drug induced mitochondrial disease/dysfunction.   I was able to take an early retirement.  Still, I have a family with young children which takes a large amount of my time, while suffering from severe physical problems of a dreaded delayed Levaquin adverse event.  Still, I like to communicate with those who are chronically suffering from reactions to these drugs to let them know they are not alone. Again, please note, unlike some others, this is a true grass roots blog, a little rough around the edges, not designed to act as an advertisement for law firms, up-sell products, or provide monetary gain, read my monetization policy or pledge.  May you have Godspeed on your journey.
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6

Another Brush With Death: Returning From The Brink

To those who are new to my plight or are unfamiliar with my personal situation, my life is delineated with a clear demarcation line. The life before taking Levaquin, a fluoroquinolone (FQ) antibiotic, and my life after. My healthy life before and my not so healthy life after. It is my story, my quin story, my life after Levaquin; Extremely healthy in one season, and a struggle with health the next.

9

Metabolomics: Hope For Chronic Floxing?

I believe that metabolomics is going to open a door for giving us insight into chronic fluoroquinolone toxicity and provide insight into treatment options for those chronically suffering.