Guide to Fluoroquinolone Facebook Groups and Pages

Updated: 4/11/2018

facebook-group

I used to have a much more extensive Guide to Facebook groups, but there are now literally a gazillion of them.  Some people run around and create them as fast as they can.  I think it is a popularity contest for some folks to see how many groups they can create 🙂  Anyway, to try to list them all would be a futile endeavor and frankly, many of them just duplicate or overlap each other.  Below I have listed a few groups that are worth of mention, after that, you are on your own, or if you have a question about the merit of a particular group you can shoot me an email or message.

Open groups are more directed to public awareness and advocacy while closed groups deal mainly with various specific, personal and private issues associated the FQ problems.   Group’s status of open or closed will be noted in their description.

CLOSED GROUPS
groups that require admittance by an admin

Fluoroquinolone Toxicity 24/7 Live Chat Group

(https://www.facebook.com/groups/191063714251094/)

With over 3,300 members, this group is a community to exchange information,support one another and promote nonpartisan activism to advocate for FQAD victims. This is a closed group where members must request to join, and only members of this group will see your posts.

 

Younger Floxies

(https://www.facebook.com/groups/911364578927712/)

For victims of fluoroquinolone toxicity 25 and under. Feel free to be yourselves here.This is a closed group and requires administrator approval to join.

 

FQ Male’s Only Group

(https://www.facebook.com/groups/595139243905692/)

This group is for all of the floxed men. Floxed men are welcome to join. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public.

Fluoroquinolone Research & Discussion Group

(https://www.facebook.com/groups/115966251889165/)

This group is an information based group, where we post articles, research, and other things of the sort about FQ toxicity. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public.  Posts are limited to research articles and discussion about research articles.  Research is limited to peer reviewed only.  This is not a group designed for general discussion and discussion is limited to discussing peer reviewed research articles.

 

Fluoroquinolone Twilight Zone

(https://www.facebook.com/groups/592093700809840)

This group focuses primarily on the terrible mental aspects of FQ Toxicity, both the cognitive difficulties like brain fog, memory loss, and painful headaches as well as the psychological troubles like depression, depersonalization, insomnia, anxiety, etc. It also supports folks that are in denial and need help with processing the illness. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public.

Long Time Floxed

(https://www.facebook.com/#!/groups/204433513058121/)

This group is a group geared towards floxies who have been floxed for at least two years or longer. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public.  Less than 400 members and moderately active.

Floxie Finder

(https://www.facebook.com/groups/222676757897021)

This group focuses on helping victims of FQ Toxicity find each other and meet up and form small regional groups. At some point, we will be able to have the strongest healthiest floxies in an area help the ones who are in bad shape. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public.

 

Christian Floxies

(https://www.facebook.com/groups/291818224294336)

This group is for Christians who have had adverse reactions to any of the FQ antibiotics. It provides encouraging and inspirational messages for members to get through their floxing. This is a closed group and requires administrator approval to join. All posts are only seen by members of that group and not the public.  A small group, but active and uplifting.

OPEN GROUPS/PAGES

Fluoroquinolone Antibiotic Toxicity (Cipro, Levaquin, Avelox, Floxin)

(https://www.facebook.com/FluoroquinoloneToxicity)

To educate the public on this antibiotic toxicity and to inspire righteous activism. The drug companies downplay and minimize this toxicity. Thousands of us should not have had our lives destroyed by this class of antibiotics. Thousands more will have their lives altered in the future.

Fluoroquinolone Wall of Pain

(https://www.facebook.com/pages/The-Fluoroquinolone-Wall-of-Pain/209182505773463)

This Facebook page was created to help raise serious advocacy and activism. They hope to help warn and prevent others from suffering a severe toxic injury by putting a public face on the travesty of FQ toxicity.

If you are a doctor, please consider joining the Hacking Fluoroquinolones Group listed below.

 

MY  QUIN STORY SPONSORED GROUPS/PAGES

My Quin Story

Open Facebook Page designed to be the companion Facebook Page for the My Quin Story Website. Designed to spur thought and share ideas, this page is open to be ‘liked’ by anyone.  Help us recognize this world-wide travesty.

(https://www.facebook.com/MyQuinStory)

My Quin Story’s Hacking Fluoroquinolones

A closed Facebook Group dedicated to unraveling chronic fluoroquinolone toxicity syndrome.  We discuss what is working for those chronically affected.  We collect information for FQ researchers and work on research projects. We have several doctors in the group. Our goal is to engage in intellectual discussions and to think ‘outside the box’ and see if there is any information that can be used to propose fixes, treatments, and/or narrow down options in a shorter time-frame.  This group is only open to those have been chronically impacted for two years or longer and consider yourself functionally disabled (to Join you must send a message to an admin.)

(https://www.facebook.com/groups/hacking.fluoroquinolones/)

Fluoroquinolone Genetics Group (currently closed and not accepting individuals)

A closed Facebook Group created to learn, gather data, research and discuss our personal genetics as it relates to Fluoroquinolone and subsequent health issues. Members are required to have had their genetics processed by a direct-to-consumer personal genomics service such as 23andMe, AncestryDNA and Family Tree DNA AND their data processed through an “interpretation-only” website, such as Interpretome, LiveWello, Genetic Genie, etc… The Admins prefer members have a LiveWello account so members can use their sandbox application and templates but that is not necessary.

(https://www.facebook.com/groups/FQGeneticsGroup/)

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