Helping the Newly Floxed: Comfort and Information

The positive thing about fluoroquinolone (FQ) web groups, whether they are email lists, forums, or groups, is that there is usually a lot of information available.  It can be a helpful thing to have varying viewpoints on such things as healing, medications, supplements, testing, etc…, because it allows the user to make more informed choices.  But there is darker side to all this information. When a newly floxed person first ventures into the waters of internet in search of answers on the mystery of FQ’s, the information can be overwhelming.  More than once, I have heard of a newbie turning away from the Internet because of the overwhelming shock of what they have discovered there.  Only after the shock has wore off do they venture back cautiously peering behind the door to see what information that they can glean hoping not to be brought to their knees again.

We, as humans, have a psychological tendency to project ourselves into another person’s journeys. So it is easy to read about another FQ victim’s horrific story and then place ourselves firmly into that person’s shoes.  I am guilty of this every now and then. I read another FQ victims tale of tragedy and see myself in those shoes.  Then inevitably, if we put ourselves in that position, we usually experience worry, fear, depression, and anxiety.  Although these emotions are normal for anyone experiencing illness, they can be exacerbated by too much information.  We have to temper our fear with the fact that everyone’s physiology is different and that there are a million different variables in play.  Even though reactions can be similar in nature, there are no two completely identical reactions.

So how do we get past this emotional overload?  That is a hard question to answer.  Each newbie that usually enters into the world of FQ damage is mainly there for a few simple reasons.  Those reasons are usually for information and comfort.  I have found that most people want the truth; they do not want to be lied to or have any information candy coated. Other the other hand they do not want to be punched in the face with it either.  If a newbie, who enters the FQ scene, runs into the wrong person, who by their own personal circumstances are cynical, cold, angry, frustrated, and depressed, they can be set off on the wrong path, sometimes with tragic results.

Even a seasoned FQ sufferer can be negatively affected by another person’s hopelessness. Every now and then I, myself, get too caught up in someone else’s depression that I have to turn away from it for a while, lest I fly to close to the sun and singe my wings.  After all, there are some dark realities out there that scare us if we look at them to long.  Man, as a creature, is not new to suffering and FQ victims do not have a monopoly on it. But our plight is unique in that we have been damaged by an ignorant medical establishment through no fault of our own. However, mankind has long wrestled with the just world hypothesis and why bad things happen to good people.  I have never met an FQ sufferer who deserved to be poisoned by a toxic drug given to them by a medical doctor.  But when we, as seasoned FQ sufferers, talk to those that are newly floxed have a responsibility to help them ease into the discomfort of the situation, lest we perpetuate one bad instance after another.

Another way to overwhelm the new FQ sufferer, or the seasoned one for that matter, is with pure information overload.  Now I consider myself a fairly smart person and I am able to understand most information given to me, even though I may have to reread it numerous times. But, even I get overloaded with raw data from individuals.  FQ victims run the gamut as far as intelligence goes.  Their intelligence stratum is very varied from those who barley understands what is happening, to those who should be splitting atoms in a lab somewhere.  I will give you an example.  The other day I asked a question of another floxie about brain neurotransmitters, which I consider myself fairly well versed.  I received the following information as part of an entire page long dissertation of raw data. “The seven mammalian TRPC channels share a structural motif in the COOH-terminal tail, the TRP box, which is located close to the intracellular border of S6 and contains the invariant sequence EWKFAR.”  What??? Now to me intelligence is not a matter of just what you know, it is also conveying it to others in a form in which others can understand it.  This goes for all the data associated with FQ’s.  We need to convey data in such a way that everyone understands what we are trying to say, especially the new victim.

What is the moral of this story?  I was never offered a comforting hand until well over a year into my plight, even though I was posting on the Internet. There are newly floxed individuals coming into the community everyday.  They arrive here either by having it suddenly thrust upon them or by a long trail of clues and connecting the dots. When they arrive they are experiencing dozens of different emotions including fear, isolation, anger, confusion, disbelief, depression, anxiety, and on and on… To keep from alienating them we need to have compassion combined with truthfulness.  One without the other makes the road a harder one.

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Admin

...damaged by fluoroquinolones in 2007 at age 46. Prior to, a healthy law enforcement official. Now an amateur FQ researcher, author, and blogger.

4 Responses

  1. Dana says:

    Hello,
    I read a little about your story. I am not sure if you developed any autoimmune diseases from these drugs, but I wanted to reach out to you. I’m so sorry for what you have been through and if have developed any type of autoimmune disease I would really like you send me your story and help me. Even if this side effect was not specific to you I’m begging you to help me spread the word. To please help me post my message below on any sites you may be on. I’m not going to stop fighting. This is not right what they are doing to people and their families. Below is a exerpt that I am posting on any message boards or websites. I hope to hear back from you.

    I am trying to find people that have taken one of fluoroquinolones and developed any time of Myositis or autoimmune disease. My mother Diane Garcia is a victim of these drugs and I am starting a campaign to prove the real danger of taking them. I feel this side effect has taken a back seat to others that are more obvious. I would like to hear from anyone that has a story to tell. More importantly I am asking you all to be brave and help me. I want people to do a video diary of their ordeal. Detailing their health prior to being give the medication. The reason for being prescribed the medication and ultimately the events that have taken place from then to present. I would like to tell you thank and how very sorry I am for you, whether you personally or a family member have been affected. Please send all videos to Dana Garcia, 5850 North Magazine Circle, Houston, TX 77084.

    Sincerely,

    Dana Garcia-Hazeslip

  2. linda says:

    Yes I have been floxed when I was given Cipro for a bladder infection. I first developed a rash and was told to keep taking it I then started hallucinating, then I could not speak or control my body movements, my left side was twitching , I could not think or sleep for days on end at the time snd years later I still suffering and lost all my teeth they became brittle and all broke off -spent thousands on dental and removal of teeth now will need implants or false teeth. I also developed gout and painful joints , panic attacks, insominia and see spider webs floating in front of my eyes all the time

  3. Kristin says:

    I have also been poisoned by Levaquin for a sinus infection. After merely 2 doses I was awoken with extreme leg pain. My leg hurt so bad I felt like it was going to explode, on a scale from 1 to 10 it was an 11. Couldn’t walk on my right leg, extreme hip pain also. Called my doctor’s office and was told to stop taking the medication. After 5 days of not taking the medication and I can not walk on my leg and my hip is very SORE! Went to the doctor today and received a shot of Tordal. Was also given Hydrocodone and a steroid. Not sure if I am ever going to be able to walk without a limp again. The pain is terrible!!!

  4. Sherry Iuliucci says:

    I was floxed in December 2016. Levaquin was the culprit. Rather than going through the horror we floxed all know, mine was peripheral neuropathy and everything that comes with it. Unbearable pain. I was literally ready for a nursing home and morphine 2 years ago. I couldn’t dress myself, couldn’t cut my food I could go on and on as some of you know unfortunately.
    The reason for this post, however is to pass on information that has helped me recover. I’d like to say 1000% but probably 80%. I started chelation and glutathione through a integrated medical doctor who basically saved my life. Intense blood work was done as well as a simple metal test. Everyone should have the toxic metal test. It’s a urine test. Result was lead poisoning. Other metals very high as well. I’ve read fluoride poisoning will also give you lead poisoning. After a year of treatment I was about 50% better but lead level increased. At the time we could not identify the source. Until recently. I found 2 articles that basically said the TEA plant, absorbes more fluoride from soil, air, water than any other plant or crop! That entire year I was drinking homemade ice tea. About 10-15 tea bags a week. Stunned by this article I stopped drinking tea. Within 7-10 days I improved dramatically! It was truly amazing. A miracle for those who know the excruciating neurological side effects.I had been poisoning myself with tea! The chelation and glutathione removed toxins and I was ingesting more fluoride every day. People need to know!
    I have yet to take another metal toxin urine test. But I would expect my lead levels have gone down substantially . I will never drinki tea again.
    This worked for me. So to summarize…fluoride gives you lead poisoning too. The lead levels can be easily tested unlike fluoride. Tea has an enormous amount of fluoride!!! After I stopped drinking tea the improvement happened quickly and I cannot tell you the positive impact it had reducing my symptoms dramatically. I still cannot believe the improvement. It’s been a couple of months now. I haven’t had chelation and glutathione in 3 weeks. I went weekly for a year.
    My advice: Do not drink tea. Never!! Get glutathione infusions. The chelation is up to you but it worked for me. Try it as it couldn’t hurt. Please
    I’ve attached just a couple of links… I was shocked. Hoping someone can benefit as I did.
    https://delishably.com/beverages/Fluoride-Content-in-Black-Tea-White-Tea-and-Green-Tea-Tea-Health-Benefits-and-Dangers
    https://fluoridealert.org/issues/sources/tea/

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