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Welcome. This website was created to chronicle my experience, observations, and opinions, as I travel through life with damage received after having an adverse event to a fluoroquinolone (FQ) antibiotic, Levaquin. This blog is the second oldest FQ blog and is a true grass root’s project designed to advocate, inform, and be the impetus for further research and information. It is dedicated to the thousands each year who become chronically affected and disabled by this entire family of prescription drugs. This supposed “safe” class of antibiotics are given out in hundreds and thousands of prescriptions daily around the world. Unbeknownst to many, these drugs can cause horrific adverse events that can disable the most healthy of individuals creating long lasting injuries. These adverse events, which can happen immediately or appear long after stopping the medication, are considered statistically insignificant by drug companies and the FDA, even though their rate of occurrence is high.
Often, the victims do not know what has befallen them, not suspecting that these drugs could be the cause of their symptoms, especially in those individuals who experience health issues months or years after ingestion. These drugs are often given in surgery without the patient’s knowledge, and are very often given to pets as well. Compounding the problem, the medical community is woefully ignorant to their method of action, unique effects, and the long term damages making the suffering endured by these drugs greatly increased. The FDA knows how dangerous these drugs can be, and have coined an acronym FQAD (Fluoroquinolone Associated Disability) describing the symptoms experienced by victims. However, and quite unfortunately, they refuse to act in a responsible manner that would help safeguard the general public. Currently there is no medical cure and no magic bullet.
Join me as a blog about research, advocacy, and living life after the FQs. I love to collect wisdom from those who are chronically suffering after taking FQ’s. If you are new to this plight, please use caution when treading the Internet waters, the information about FQ toxicity can be overwhelming, opinions vary, there is a lot of misinformation, and emotions run high. Unfortunately, like many other Internet communities, there are strong inter-community politics and camps of ideas which should be also approached lightly by the newcomer (especially on social media). Having said that, those that are in true need of help and are seeking honest answers to their plight can usually find some form of help and solace. If you are new and want to know What is Floxing?, click here. Other links that may help is FQ Faq, About Me, the popular What Helps page, which is information gleaned from the floxed community and its free.
I receive many emails each week regarding FQ’s, from newly affected individuals and chronically affected alike. Many times it is impossible for me to return all emails in a timely manner, but I try my best. Please subscribe to my site using the form in the right hand column. I appreciate contacts, really I do, if you want to me to try something please read Before You Try To Sell Me Something before contacting me. If you do Facebook, please like my FB page here, which has over 3.9K followers, as I post information there frequently.
Many people email me and ask how I am doing, please read me about page for up to date information. I have been dealing with this adverse event for nearly thirteen years. Although I was forced to work for several years into my reaction I am now, for the most part, officially functionally disabled. I have been dealing with what my doctor has diagnosed as drug induced mitochondrial disease/dysfunction. I was able to take an early retirement and am recognized disabled by the government. Still, I have a family with several children which takes a large amount of my time. I do like to communicate with those who are chronically suffering from adverse events to these drugs when I can to let them know they are not alone. Again, please note, unlike some others, this is a true grass roots blog, a little rough around the edges, not designed to act as an advertisement, up-sell products, provide monetary gain, be politically correct, or make me famous (just the opposite as a matter of fact). Please read my monetization policy or pledge. Thank you for visiting and may you have Godspeed on your journey.
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Please read my disclaimer regarding the use of this site. Thank you.
On August 24th, 2015, members from the FQ community met with staff from the FDA in a third meeting to address the various FDA failures to adequately warn the general public about the true dangers FQ's pose to the general public, especially our children.
Dr. Miriam J. de Jonge M.D., who herself was floxed has contacted me and asked me to post, what I feel, is a comprehensive and well documented "Dear Colleague" letter, informing other doctors of (FQ) toxicity. It can be used to foster patient/doctor discussions. It is available here to download.
Please help support our fundraising t-shirt campaign, which will provide visual awareness to the eyes of the world, and assist us with operating costs. We have designed a t-shirt to help bring FQ awareness to the general public, but this cannot happen without your assistance.
Why would the FDA make such an outrageous decision to enter into an unprecedented agreement to monitor post-marketing drug surveillance with a private company run by ex-pharmaceutical executives? The FDA would be better off looking at its FAERS data. If they did, they would see drug signals that they have ignored, especially for FQ's.
Dr. Linda Martin, Dr. Alan Redd, David Melvin, and John Fratti submitted an abstract for the UMDF Symposium on behalf of the FQ community. We are pleased to announce that, after being peer-reviewed by the UMDF Abstract Review Committee, their abstract was selected as a poster for the Symposium.
"The legal and Industry Guidance bars are not too high. The problem is that the FDA has failed to do its job regarding Fluoroquinolone antibiotic safety.", Dr. Charles Bennett, PharmedOut 2015
On June 10th, 2015 representatives from the Fluoroquinolone community met with Senate Staffers at the Dirksen Senate Building in Washington, D.C. to ensure pressure is maintained on the FDA in regards to updated warnings.
“You can’t do what I do and think the drug companies don’t notice you.” With the media scrutiny and the Citizen Petitions filed over the last year you can bet that Bennett has gotten the attention of some very powerful entities; entities that are going to push back in an effort to silence or undermine our message.
Charles Bennett MD PhD Chair of the Center for Economic Excellence in Medication Safety and Efficacy, Bennett-flashUniversity of South Carolina will be speaking at the PharmedOut’s 5th Annual Conference on June 11-12, 2015 at Georgetown University about Fluoroquinolones..
Our FQ team will be working closely with Dr. Golomb as she takes research to the next level in the near future. Stay tuned here as I will be sure to inform the FQ community of any pertinent developments with her, along with developments with other researchers that we work with.