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Welcome. This website was created to chronicle my experience, observations, and opinions, as I travel through life with damage received after having an adverse event to a fluoroquinolone (FQ) antibiotic, Levaquin. This blog is the second oldest surviving and thriving FQ blog, second only to John Fratti’s “Hurt By Levaquin.” It is a true grass root’s project designed to advocate, inform, and be the impetus for further research and information. It is dedicated to the thousands each year who become chronically affected and disabled by this entire family of prescription drugs. This supposed “safe” class of antibiotics are given out in hundreds and thousands of prescriptions daily around the world. Unbeknownst to most, these drugs can cause horrific adverse events that can disable the most healthy of individuals creating long lasting injuries. These adverse events, which can happen immediately or appear long after stopping the medication, are considered statistically insignificant by drug companies and the FDA, even though their rate of occurrence is very high.
Often, the victims do not know what has befallen them, not suspecting that these drugs could be the cause of their symptoms, especially in those individuals who experience health issues months or years after ingestion. These drugs are often given in surgery without the patient’s knowledge, and are very often given to pets as well. Compounding the problem, the medical community is woefully ignorant to their method of action, unique effects, and the long term damages making the suffering endured by these drugs greatly increased. The FDA knows how dangerous these drugs can be, and have coined an acronym FQAD (Fluoroquinolone Associated Disability) describing the symptoms experienced by victims. However, and quite unfortunately, they refuse to act in a responsible manner that would help safeguard the general public. Currently there is no medical cure and no magic bullet.
Join me as a blog about research, advocacy, and living life after the FQs. I love to collect wisdom from those who are chronically suffering after taking FQ’s. If you are new to this plight, please use caution when treading the Internet waters, the information about FQ toxicity can be overwhelming, opinions vary, there is a lot of misinformation, snake-oil peddlers, and emotions that run high. Unfortunately, like many other Internet communities, there are strong inter-community politics and camps of ideas which should also be also approached lightly by the newcomer (especially on social media). Having said that, those that are in true need of help and are seeking honest answers to their plight can usually find some form of solace. If you are new and want to know, What is Floxing? Other links that may help is FQ FAQ, About Me, the popular What Helps page, which is information gleaned from the floxed community and its free, or you can participate in research, or donate to FQ research.
I receive many emails each week regarding FQ’s, from newly affected individuals and chronically affected alike. Many times it is impossible for me to return all emails in a timely manner, but I try my best. Please subscribe to my site using the form in the right hand column. If you do Facebook, please like my FB page here, which has over 4,000 followers, as I post information there frequently.
Many people email me and ask how I am doing, please read me about page for up to date information. I have been dealing with this adverse event for nearly thirteen years. Although I was forced to work for several years into my reaction I am now, for the most part, officially functionally disabled. I have been dealing with what my doctor has diagnosed as drug induced mitochondrial disease/dysfunction. I was able to take an early retirement and obtain disability as well. Still, I have a family with several children which takes a large amount of my time. I do like to communicate with those who are chronically suffering from adverse events to these drugs when I can to let them know they are not alone. Again, please note, unlike some others, this is a true grass roots blog, a little rough around the edges, not designed to provide me monetary gain, be politically correct, or make me famous (just the opposite as a matter of fact). Please read my monetization policy or pledge. Thank you for visiting and may you have Godspeed on your journey.
Please read my disclaimer regarding the use of this site. Thank you.
Life After Levaquin Website News:
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Articles & Posts Appear Below The Welcome
On Thursday May 12, 2016 the FDA contacted those who have been pursuing label changes for the Fluoroquinolones and issued a public statement that the FDA is requiring label changes for antibacterial drugs called fluoroquinolones
Dr. Charles Bennett has been able to successfully publish a paper titled "Fluoroquinolone-Related Neuropsychiatric and Mitochondrial Toxicity: a collaborative investigation by scientists and members of a social network."
It is very disturbing that an antibiotic, which is often given out for routine infections, may result in violence, anger toward others, and horribly, may result in suicide-related adverse events.
On Nov. 5th, the true stars of our community took to the podium at the FDA to tell their personal stories. I, along with countless others, were humbled and honored. This meeting represented a huge step in the progress we are making to gain complete recognition of the travesty that the fluoroquinolone class of pharmaceuticals has wrought upon society, to achieve justice for those that have been damaged by these drugs, and to prevent future unnecessary pain and suffering not only for this generation, but for generations to come.
A interesting two part series covering our five year research relationship with Dr. Noble, U of R; In this article, part 2, he reveals troubling findings about Levaquin.
A interesting two part series covering our five year research relationship with Dr. Noble, U of R; He has assisted us with a submission for the upcoming FDA Meeting, asked us to collect data for his research, and in part 2 reveals troubling findings about Levaquin.
Dr. Beatrice Golomb, University of California San Diego, has been able to successfully publish a paper with four case reports of individuals suffering from Fluoroquinolone Toxicity.
We believe that the attention given the Fluoroquinolones through the combined media stories, past rallies, citizen petitions, in addition to community members meeting directly with FDA officials, provided some of the impetus, in part, for the scrutiny of the Fluoroquinolones being prescribed for these common health conditions.
On August 24th, 2015, members from the FQ community met with staff from the FDA in a third meeting to address the various FDA failures to adequately warn the general public about the true dangers FQ's pose to the general public, especially our children.
Dr. Miriam J. de Jonge M.D., who herself was floxed has contacted me and asked me to post, what I feel, is a comprehensive and well documented "Dear Colleague" letter, informing other doctors of (FQ) toxicity. It can be used to foster patient/doctor discussions. It is available here to download.