Please note: Some of our ongoing research is delayed while researchers are busy engaged in the fight against the Coronavirus. I will post updates on any information that I receive, so please check back here. Hopefully these delays will not be too long.
Surveys, Studies, and Research
Many people ask “what can I do to help?” One way to help is by participating in a study, research or by completing a survey. On this page I will list Fluoroquinolone related research, surveys and studies that provide opportunities for participation. Your participation, opinions and data are valuable to both academic researchers, as well as other floxed individuals. These steps inch us closer to that day in the future when this travesty is recognized by the entire medical establishment and there are viable treatments available for those who are suffering. hank you for visiting and please check back often.
2020 will be an exciting year for FQ research. Our group has been actively working to recruit academic interest in FQ toxicity and it is starting to gain momentum. We had a slow start back in 2017 and 2018 with some illnesses knocking us off track, but we are now getting back into the swing of things. Please note that we only work with researchers from accredited academic organizations and institutions. Participants can be assured of their privacy. Our main goal is to move FQ toxicity from obscurity to the front page. To do this we need quality academic papers, case studies and research. The following are either recruiting or searching for participants. (Please note, we often do not list the research organization’s name or contacts publicly in order to eliminate spam and unwanted contacts. All accepted participants will be fully informed and will participate in accordance with HIPPA and IRB stipulations where applicable).
We have an academic genetic researcher that is researching FQ damage to mitochondria. Their research, which started in January of 2020 will be ongoing in different phases. Hopefully, depending on IRB approval, it will be opened to a large group of U.S. based individuals suffering from FQ Toxicity. Currently the researcher is looking for anyone that has been ‘floxed’ and has had a muscle biopsy. If anyone has had a muscle biopsy, or knows of someone who has had a muscle biopsy, it is imperative that they participate. Pathology labs are required by law to store residual samples for a certain amount of time and some of them will store for even longer. Even if a previous muscle biopsy is negative, the researcher who will be conducting this study can contact the lab, get the necessary authorizations, and there will be no cost to the patient. Again this research is focusing on damages to mtDNA in muscle tissue from the FQ’s. This study will eventually be expanded, but for now muscle tissue is where they want to focus. Please contact me ASAP if you have had a biopsy or know of someone who has. We will put you in touch with the researcher promptly.
We are in the process of establishing a mitochondrial (mito) study on those suffering from FQ Toxicity. This academic study will hopefully commence later in 2020 and focus on mito health post floxing. It will be measuring mito health using the cutting edge Seahorse Biosciences extracellular flux analyzer which analyzes mito respirometrics. We are currently in the process of establishing the research team, developing an IRB, and determining funding. This testing will be done on serum (blood). Check back for status updates.
We are seeking to publish a FQ community driven peer-reviewed case study in collaboration with a researcher from the Southern Network on Adverse Reactions (SONAR) from the South Carolina College of Pharmacy detailing delayed onset adverse events (late effects) to the fluoroquinolone (FQ) antibiotics.
If you have suffered from a delayed onset adverse event to the FQ’s, click here to apply.
The UCSD Fluoroquinolone Effects Study
Please note that, although I do provide Dr. Golomb with data for various projects, I am not affiliated with this survey.
A study to identify and describe beneficial and adverse effects associated with fluoroquinolone antibiotics is being conducted by Dr. Beatrice A. Golomb and her colleagues at the University of California, San Diego. Example fluoroquinolones include Cipro or Ciprodex (ciprofloxacin), Levaquin or Tavanic (levofloxacin), Avelox or Vigamox (moxifloxacin), Zymar or Tequin (gatifloxacin), and Floxin (ofloxacin). Participate in the study here: http://fqstudy.info/Fluoroquinolone_Effects_Study/Welcome.html